Rare Disease Day History
Rare Disease Day seeks to raise awareness about uncommon diseases which often lack treatment and accessible drugs. A disease or disorder is defined as rare when it affects less than 1 in 2000 people. This day aims to inform policy makers, public authorities, researchers, and health professionals about the needs of those affected by rare diseases. Typically, there are no available cures for rare diseases. Many often go undiagnosed as well.
Rare Disease Day was established in 2008 by the European Organisation for Rare Diseases (EURORDIS). It is observed annually on the last day of February.
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Rare Disease Day Facts
In the News and Trending for Rare Disease DayUpdated Renfrew man raises awareness of ALD for Rare Disease Day
glasgowtimes.co.ukRare Disease Day: 28 February 2022
rcophth.ac.ukElderslie mum speaks about loss of her son ahead of Rare Disease Day 2022
renfrewshire24.co.ukRare Disease Day 2022: Shining a light | Genomics England
Rare Disease Day Top Events and Things to Do
Rare Disease Day References and Related Siteswww.eurordis.org: EURORDIS Rare Disease Europe www.rarediseaseday.org: Rare Disease Organization