|Compiled on||#RareDiseaseDay, #Rarediseaseday2023|
|Related Hashtags||#LightUpForRare, #Raredisease, #Canada4Rare, #Yeg, #ShareYourColours|
|2023 Date||February 28, 2023|
|2024 Date||February 29, 2024|
Rare Disease Day History
Rare Disease Day seeks to raise awareness about uncommon diseases which often lack treatment and accessible drugs. A disease or disorder is defined as rare when it affects less than 1 in 2000 people. This day aims to inform policy makers, public authorities, researchers, and health professionals about the needs of those affected by rare diseases. Typically, there are no available cures for rare diseases. Many often go undiagnosed as well.
Rare Disease Day was established in 2008 by the European Organisation for Rare Diseases (EURORDIS). It is observed annually on the last day of February.
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Rare Disease Day Top Events and Things to Do
Rare Disease Day References and Related Siteswww.rarediseaseday.org: Rare Disease Organization www.raredisorders.ca: Rare Diseases ppforum.ca: Rare Diseases In Canada