International Albinism Awareness Day

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2024 DateJune 13, 2024
2025 DateJune 13, 2025

International Albinism Awareness Day

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International Albinism Awareness Day History

International Albinism Awareness Day is a global observance that seeks to raise awareness about albinism and the challenges faced by people with the condition. Across the world, this day aims to shed light on the social, cultural, and medical aspects of albinism, as well as advocating for the rights and well-being of those affected. The observance encourages solidarity and empathy, with the ultimate goal of fostering an inclusive and understanding environment for people with albinism.

The United Nations General Assembly adopted a resolution in 2014 to designate June 13th as International Albinism Awareness Day, in response to the ongoing discrimination, stigmatization and violence faced by those with the condition. As a diverse and inclusive society, Canadians are encouraged to participate in the observance to support people with albinism, promote a greater understanding of the challenges they face, and learn about the various aspects of albinism that extend beyond its physical manifestations.

In Canada, various organizations, community groups, and individuals commemorate International Albinism Awareness Day by hosting events, workshops, and discussions that highlight albinism and the experiences of those living with the condition. This may include educational initiatives that seek to dispel myths and misconceptions, fundraisers to support research and advocacy efforts, or artistic and cultural celebrations that showcase the talents and resilience of the albinism community. By engaging with these customs and activities, Canadians emphasize their commitment to fostering an inclusive society that values the contributions and perspectives of all its members. International Albinism Awareness Day is observed on the 13th of June each year.

International Albinism Awareness Day facts

  • It is estimated that about 1 in 17,000 people worldwide has some form of albinism.
  • Albinism is often associated with various visual impairments, such as nystagmus (involuntary eye movements), strabismus (crossed or misaligned eyes), and photophobia (sensitivity to light).
  • Albinism is caused by a genetic mutation that affects the production of melanin. Melanin is the pigment responsible for coloring the skin, hair, and eyes. It is typically inherited when both parents carry the gene mutation.
  • In Canada, the prevalence of albinism is approximately 1 in 20,000 individuals.
  • People with albinism often require accommodations from educational institutions and employers due to vision impairment. The Canadian government has implemented accessibility and disability laws to protect the rights of people with disabilities, including those with albinism.

Top things to do in Canada for this observance

  • Register for the virtual choir hosted by National Organization for Albinism and Hypopigmentation.
  • Explore a reading list that can help educate and spark conversation about albinism.
  • Learn about albinism and share your knowledge with others to promote understanding and acceptance. You can visit websites like Albinism Fellowship of Canada (www.albinismcanada.com), National Organization for Albinism and Hypopigmentation (www.albinism.org), or watch documentaries like Born This Way: The Inner Journey of Albinism to gain more insight.
  • Donate to organizations that work on improving the lives of people with albinism. Some prominent organizations in Canada include the Albinism Fellowship of Canada and the Canadian Albinism Network.

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