International Albinism Awareness Day

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2024 Date13 June 2024
2025 Date13 June 2025

International Albinism Awareness Day

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International Albinism Awareness Day History

International Albinism Awareness Day is a global observance aimed at raising awareness about albinism, a rare genetic condition affecting the skin, hair, and eyes. This annual event seeks to promote the human rights and well-being of individuals with albinism, who often face discrimination, prejudice, and social exclusion due to their unique appearance. The observance focuses on creating a more-inclusive society, celebrating the achievements of people with albinism, and educating the public about the challenges faced by these individuals.

The United Nations General Assembly adopted a resolution in 2014 to designate June 13th as International Albinism Awareness Day. India, with its diverse and densely populated society, has its share of people with albinism who continue to face challenges in accessing education, healthcare, and employment opportunities, owing to the widespread lack of understanding and misinformation surrounding the condition. It is imperative for the people of India to acknowledge and support this observance, as it seeks to create a more-inclusive and equitable society for individuals with albinism in India and around the world.

In India, International Albinism Awareness Day is marked by various activities and events aimed at increasing understanding and knowledge about this rare genetic condition. Individuals, organizations, and communities come together to organize awareness campaigns, panel discussions, seminars, and cultural programs showcasing the talents of people with albinism. By celebrating the achievements of people with albinism and demonstrating their capabilities and contributions, this observance plays a crucial role in challenging stereotypes, breaking down barriers, and encouraging a more inclusive society. International Albinism Awareness Day is observed annually on June 13th, inviting everyone to join in the efforts to promote understanding, acceptance, and inclusivity for these exceptional individuals.

International Albinism Awareness Day facts

  • It is estimated that about 1 in 17,000 people worldwide has some form of albinism.
  • Albinism is often associated with various visual impairments, such as nystagmus (involuntary eye movements), strabismus (crossed or misaligned eyes), and photophobia (sensitivity to light).
  • Albinism is caused by a genetic mutation that affects the production of melanin. Melanin is the pigment responsible for coloring the skin, hair, and eyes. It is typically inherited when both parents carry the gene mutation.
  • Many people in India lack awareness and knowledge about albinism, leading to misunderstandings and misconceptions. People with albinism often face discrimination due to their appearance, with some considering them as cursed or unhealthy.

  • People with albinism in India often lack awareness of the risks of skin cancer due to their reduced melanin levels.

Top things to do in India for this observance

  • Register for the virtual choir hosted by National Organization for Albinism and Hypopigmentation.
  • Explore a reading list that can help educate and spark conversation about albinism.
  • Watch a documentary or movie to learn more about living with albinism in India. Here are our suggestions:
    1. God's Lonely Men: India's Albino Brothers - This documentary by Barcroft TV introduces audience to a family in India with multiple members who have albinism.
    2. Albino in Indian Society - This is a short documentary on the life of a young man, Sanjeev, with albinism living in India. The film provides insight into his daily life and the challenges faced by people with albinism in the country.
    3. White Rainbow - This fictional drama film provides a compelling look at the life of a woman with albinism in India. The movie touches upon the myths and stigmas faced by people with albinism in India, as well as issues surrounding female empowerment and gender discrimination.
  • Planting a tree in honor of International Albinism Awareness Day can symbolize growth, strength, and unity for the albinism community.

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