Top X Posts (formerly Tweets) for Rare Disease Day -
in 2024Updated
Today is Rare Disease Day, & I wanted to reshare a piece I wrote about mine, a spinal CSF leak that I sustained 6.5 years ago via lumbar puncture. It’s a debilitating condition, & for some cases like mine a permanent or even long-term fix is elusive. Show more
Today's the day! We are thrilled to officially launch the Canadian Rare Disease Network (CRDN) on #RareDiseaseDay. Together, we will make a difference for ALL rare disease patients across Canada. #CRDNLaunch #RareLivesSharedStrength Show more
We’re thrilled to announce the launch of Canada’s Rare Disease Network newswire.ca This Rare Disease Day, Feb. 29, CORD celebrates the launch of the Canadian Rare Disease Network -...
Today, on Rare Disease Day, we're united in putting the CARE in RARE diseases like Huntington disease, spreading hope, awareness and support across Canada. Our dedicated social workers are here for you. Find your care here: contactme.cloud/form/huntingto Show more GIF
Thursday is #RareDiseaseDay, a day to raise awareness for the 446 million people worldwide living with a rare disease. Read what @CIHR_IG is doing to support rare disease research in a message from Scientific Director Dr. Chris McMaster. Show more ALT
Tomorrow is the day! Stay tuned for our official launch announcement at @CORD ’s #RareDiseaseDay Summit. We can’t wait to share our mission and vision with you. Join us on this exciting journey.
— Canadian Rare Disease Network (CRDN) (@CanadianRDN) February 28, 2024
Join us at the Rare Disease Day 2024 Summit in Ottawa! Celebrating our Rare Heroes! Come celebrate with us https://raredisorders.ca/rare-disease-day-2024-2/… @picardonhealth , @susabenseler , Show more
Great Start to the Rare Disease Day 2024 Summit #Canada4Rare UPDATE: Implementation on the National Strategy for Drugs for Rare Diseases Panel Étienne Richer (podium), @CIHR_IG Heather Logan Show more
IT'S RARE DISEASE DAY GLOBALLY! Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours
February is Rare Disease Month-Feb 29 is rare disease day. Did you know that #Scleroderma is the most common rare autoimmune disease in Canada @SclerodermaCAN @scleroderma_sso